I feel like a ghost most days.
This feeling intensifies when I am in a very social situation with people in loud, chaotic, multiple-conversations-happening-at-once setting. I have a very difficult time functioning in this type of setting, no matter if the mood is happy or not, so I don’t really engage and end up usually shutting down.
This, naturally, confuses most people and I usually end up getting asked if I’m okay or will be mistaken for being aloof, shy, upset, detached, moody, etc.
Then I become a ghost.
This happened recently. I was struggling to be “on” after having a really exhausting day in terms of too much “people-ing” and sensory overload in a busy city with huge crowds, etc. I couldn’t engage enough. I probably should have spoken up about the problems I was having but didn’t. The company knew about my diagnosis so maybe they should’ve spoken up, too.
Regardless, this kind of stuff triggers the fight-or-flight response, making me want to disappear from everyone and everything.
I found a really good article from the National Autistic Society regarding autism and loneliness. It is spot on and perfectly depicts my own feeling on this subject.
I’m learning that these down-to-the-bone-marrow feelings of isolation are probably linked, in a way I suppose, to the shutdowns.
While I feel my particular autism has many strengths, communication is one of the areas where I do find it to be a disability.
Making and keeping friendships.
I am going to be 35 on Monday and I suffer just as much as I did when I was a child when it comes to integrating into a social “norm” setting and maintaining friendships.
I am very good at “camouflaging” this, when I have the energy to, so anyone who has met me in the last few years won’t really notice or will be mega surprised to find out about my autism.
But those who knew me before then–before I mastered my masking techniques–won’t be surprised at all.
And masking is utterly exhausting.
I have written before how I don’t want to wear these masks all of the time. I want to be who I am and have people understand that I am different and that I need some guidance on how to effectively “fit in.”
I have not been wearing these masks lately but few people around me are changing and, in some cases, the “friendships” are getting worse because some people refuse to talk to me about my autism diagnosis and refuse to adopt a social situation that will help me communicate without shutting down (i.e., something a little more quiet or with less people).
Not masking is making me feel more isolated than when I am masking. But when I mask, I feel like I am inauthentic and why hide who I actually am? I don’t think it’s inappropriate for me to address when I am having troubles due to ASD and kindly request if we can move somewhere more quiet, for example. Usually, people are okay to do this, but some aren’t. And the ones that aren’t, I guess, aren’t really worth my time in the first place.
Is it unhealthy for me to think that, because I am trying to compromise by improving scripting (or “chitchat”) skills by asking, what to me, are useless questions with no meaning to help “neurotypical” people feel comfortable, people should compromise on helping me in social situations by being a little more sensitive to my disability with communication?
Am I asking too much? I genuinely don’t know if I am or not. It would be helpful for someone to tell me so I can appropriately address the situation(s) in the future.
It’s unfortunate that a lot of my sensitivities are very socially focused (overly-sensitive sensory sensitivity and sensory avoidance) but that doesn’t mean I don’t like people or lack a need for human interaction.
I do need it.
And I’ve tried.
And will keep trying.
Even though it hurts sometimes.
But, I guess, those who are actually interested in my good qualities and the friendship I can offer will talk about this with me. People who show complete apathy, avoidance or other negative responses aren’t really worth the energy I have to expend to keep trying.
Or may they do care but aren’t sure how to talk about it with me.
To communicate in a world where most people, “neurotypical” or not, are already pretty poor at communicating is hard. I mean, we are all just children with hurt feelings inside adult bodies, right? We should probably be more mindful about addressing those hurt feelings, talk it out and move on.
A quote by Nita taken from that article by NAS I linked to earlier, who is also autistic, goes like this:
“I am autistic, but I am no less worthy of friendship than anyone else.”
Those. Words. Exactly.